Deer Park woman has miracle baby despite high-risk kidney condition

Kaylee Henriquez holds her newborn baby Mateo Bautista Kaylee Henriquez holds her newborn baby Mateo Bautista at the North Shore-LIJ Dialysis Center in Manhasset. (March 21, 2013) Photo Credit: Newsday / Alejandra Villa

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Kaylee Henriquez has had two high-risk pregnancies. But the second one, her doctors said, came close to being a medical miracle.

"This is about as high-risk as it gets," said Dr. Victor Rosenberg, a specialist in high-risk pregnancies at North Shore University Hospital in Manhasset.

Henriquez, 26, of Deer Park, has a rare, chronic kidney condition that has caused her twin waste-filtering organs to fail. She requires kidney dialysis to sustain her health and life. During her pregnancy, she went from three to six days a week on dialysis.

Most people with end-stage kidney disease are on dialysis only three, said her other physician, Dr. Ilene Miller, medical director of North Shore's dialysis services.

Rosenberg successfully delivered tiny baby Mateo about three weeks early. He weighed only 4 pounds, 2 ounces.

The case, however, is a gigantic leap forward for medicine. Most women on dialysis are advised against pregnancy.

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"When she was 15 weeks pregnant, I put her on dialysis in an attempt to give her as normal a pregnancy as possible," Miller said. "It is a very, very precarious medical situation to be on dialysis while pregnant."

This case proves that it is medically possible to have renal failure, be on dialysis and deliver a healthy baby, Miller said.

Henriquez, meanwhile, was beaming Thursday as she cuddled her month-old son.

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"I am obviously excited," Henriquez said. She and her husband, Manny, have "two healthy children. . . . It's really nice to hear that my situation might open doors to some different possibilities for other women."

So few women have completed a successful pregnancy while on dialysis that the medical literature has only eight documented cases, Miller explained Thursday as she called for a national registry -- a database -- to track patients and their outcomes.

Miller called Kaylee and baby Mateo remarkable for pulling through in great spirits and good health after a medically intense, nine-month ordeal.

"I am delighted," Miller said, "and hopefully at some point Kaylee will get a transplant. I can't put her on it [the organ-transplant waiting list] right now because she's too close to the pregnancy. But that is the plan for the future."

Henriquez has a condition known as IGG-IGM glomerulonephritis, an exceptionally rare kidney disorder that causes swelling of extremities and soaring blood pressure.

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Beyond the cases in the medical literature, the National Kidney Foundation carries a lengthy discussion on its website warning about the dangers of being pregnant while on dialysis.

Women with severe kidney disease are often cautioned to terminate their pregnancies, and that was the initial advice Henriquez received three years ago during her first pregnancy when she saw doctors in New York City.

Determined to be a mom -- at whatever cost -- she sought the help of North Shore doctors.

"I wasn't on dialysis the first time, my condition didn't warrant it, but I was on steroids and I was very sick during that pregnancy," she said. "Isabella was born at 31 weeks."

The average pregnancy runs about 38 weeks.

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Just as Miller had guided Henriquez through her latest pregnancy, she was on hand for the first.

"Even though it's a very difficult situation and takes a lot of dedication to your health care, you can have children. That's what's important," Henriquez said.

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