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Benefit at Oheka for rare diseases
Next month the nonprofit organization Angela’s House is hosting “A Night for a Cure,” an event at the historic Oheka Castle to benefit organizations dedicated to finding cures for rare and serious children’s diseases and disorders.
Among those participating are Huntington pediatrician Bruce Gerberg and his wife Nicole. Last year, their 4-year-old daughter was diagnosed with Smith-Magenis Syndrome, one of 15 diseases and disorders the event is raising awareness and money for.
Smith-Magenis syndrome is a developmental disorder that affects many parts of the body. The major features of this condition include mild to moderate intellectual disability, delayed speech and language skills, distinctive facial features, sleep disturbances and behavioral problems, according to the Web site of Parents and Researchers Interested in Smith-Magenis Syndrome.
The Gerbergs became involved with Angela’s House after learning about the nonprofit organization through a teacher at their daughter’s school, the Developmental Disabilities Institute.
Angela’s House was created in 1992 to offer families and professionals an agency to contact in helping medically frail children.
“A Night For a Cure” takes place Thursday, Nov. 19 from 7 to 11 p.m. at Oheka Castle, 135 West Gate Drive, Huntington. Hors d’oeuvres, cocktails and dinner will be served. Entertainment includes live music, dancing and a Chinese Auction. Tickets are $125; RSVP by Nov. 11.
For more, visit angelashouse.org or call 631-979-2620.