Young ROHHAD patients

At the age of two, a seizure caused Trevor Ward to suddenly stop breathing. The lack of oxygen to his brain left him severely brain damaged. It would take years for doctors to confirm it was a rare disorder called ROHHAD (Rapid-onset Obesity with Hypothalamic Dysfunction, Hypoventilation and Autonomic Dysregulation) that had caused the seizure. For Brigid Cooleen, being diagnosed with the disease at an early age hasn't stopped her from becoming an honor student at her high school.

advertisement | advertise on newsday