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East Meadow, December 10 2008 Kathy Twible with
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East Meadow, December 10 2008 Kathy Twible with her six-year old son Robert who has Epidermolysis Bullosa or "EB", a rare skin disease. Newsday/Viorel Florescu(Credit: Viorel Florescu, Newsday)

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East Meadow boy suffers from rare skin disease