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Nicolas Vigliotti suffers from a rare degenerative genetic disorder since birth. He's been confined to his home for most his life, but Nico's mother made it her mission to give him purpose and a reason to go on when hope was difficult....

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Nicolas Vigliotti suffers from a rare degenerative genetic disorder since birth. He's been confined to his home for most his life, but Nico's mother made it her mission to give him purpose and a reason to go on when hope was difficult. (Credit: Newsday / Photography: Alejandra Villa; Editor: Megan Miller)